Little news and a recap
It isn’t everything but the highlights. Yesterday I saw my doctor due to severe pains. I didn’t know at the time that I needed a letter from her for this neuro appointment tomorrow. Between a woman named Lori at the insurance company and the hospital, plus my doctor, maybe they will see me.
At the time the only neuro appointments I could get were in June or later, except for a neuro surgery consult in Philly in 6 days.
With a concussion less than two years ago, I thought I maybe had problems again and or also menopause.
This led to a pcp and neuro appointment, plus lots of blood work and some other tests. The neurologist offered medication right away, but it was unclear if it would be for epilepsy or off label depression medication for headaches, or what, so I tried to get another opinion and tests
After confirming an abnormality in my pituitary or maybe near it I was referred ti endocrinology. These appointments were impossible to get, but I did finally see one last week due to a miracle cancellation. She didn’t think it was causing my symptoms but I am waiting on blood work as some is normal but more is needed.
In the meantime I developed tinnitus for the first time in my life, and headaches and other issues got worse. The emergency ran ct and mri on April 24 and deemed me not acute and gave conflicting opinions on what may be causing the symptoms but agreed that endocrinology follow up was needed.
Around mid April I noticed sharp pains tingling numbness and it spread to different parts of my body. I wonder if it is related or if I am injured.
My mental health is the best it’s been despite great challenges, and that is a whole other story. I did a behavioral health intake, the third one in an effort to find medical evaluation and counseling.
I am keeping up with work but not building, and I need more time to do things. While the crickets in my ear is kind of nice sometimes, other times it’s difficult. Every day I have pains and struggle with Liv and work and other things.
So even though the insurance and hospital and me have not sorted it all I am taking my images and tests and questions to this appointment tomorrow in hopes they will see me, as the back and forth about it has been a nightmare. So it will be nothing short of a miracle.
And I have tested negative for lots of things, appointment for ENT in June. And a physical therapy assessment to see if they can find anything.
I’ve never experienced pains like these and am looking into all resources so I can take Liv out more, visit family and friends, and get back to work in some fashion. I just have to remind myself I’m exhausting all options for answers or relief so I can keep Living.
Liv went out to see her friend the crossing guard I drove us
This post was boring for me but hopefully helpful for people to understand a timeline a little better.
And take your vitamin d.
Glad for these write ups, I appreciate your capacity to live and feel and tell the story…